Developing the Children's Critical Illness Impact Scale: capturing stories from children, parents, and staff.
Identifieur interne : 001A73 ( Main/Exploration ); précédent : 001A72; suivant : 001A74Developing the Children's Critical Illness Impact Scale: capturing stories from children, parents, and staff.
Auteurs : Janet E. Rennick [Canada] ; Linda F. Mcharg ; Melissa Dell'Api ; C Celeste Johnston ; Bonnie StevensSource :
- Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies [ 1529-7535 ] ; 2008.
Descripteurs français
- KwdFr :
- Canada (MeSH), Enfant (MeSH), Femelle (MeSH), Humains (MeSH), Indice de gravité de la maladie (MeSH), Maladie grave (psychologie), Mâle (MeSH), Parents (psychologie), Patients hospitalisés (psychologie), Personnel infirmier hospitalier (psychologie), Sortie du patient (MeSH), Troubles de stress post-traumatique (MeSH), Unités de soins intensifs pédiatriques (MeSH).
- MESH :
- Wicri :
- geographic : Canada.
English descriptors
- KwdEn :
- Canada (MeSH), Child (MeSH), Critical Illness (psychology), Female (MeSH), Humans (MeSH), Inpatients (psychology), Intensive Care Units, Pediatric (MeSH), Male (MeSH), Nursing Staff, Hospital (psychology), Parents (psychology), Patient Discharge (MeSH), Severity of Illness Index (MeSH), Stress Disorders, Post-Traumatic (MeSH).
- MESH :
- geographic : Canada.
- psychology : Critical Illness, Inpatients, Nursing Staff, Hospital, Parents.
- Child, Female, Humans, Intensive Care Units, Pediatric, Male, Patient Discharge, Severity of Illness Index, Stress Disorders, Post-Traumatic.
Abstract
OBJECTIVE
With the evolution of pediatric critical care medicine has come an awareness of the ethical imperative of healthcare professionals to attend to the psychological sequelae of technologically intensive care. Recent attempts to measure psychological outcomes in these children have been limited. The purpose of this study was to develop a measure of posthospitalization distress, the Children's Critical Illness Impact Scale (CCIIS), for children aged 6-12 yrs following pediatric intensive care unit hospitalization.
DESIGN
A measurement development study consisting of two phases: 1) item generation and scale formatting; and 2) item reduction and scale revisions. Items were generated following thematic analysis of qualitative data from focus groups and individual interviews with children, parents, and healthcare professionals. Children reviewed items for interpretability and importance and assessed scaling technique and item presentation; healthcare professionals further evaluated item relevance.
SETTING
The pediatric intensive care units of three quaternary care, Canadian pediatric teaching hospitals.
PATIENTS
Phase 1 included 18 children, 22 parents, and 12 healthcare professionals (n = 52). Phase 2 included eight children and four healthcare professionals (n = 12).
MEASUREMENTS AND MAIN RESULTS
Five key domains were identified in the thematic analyses: worries, fears, friends and family, sense of self, and behaviors. Thirty-six items were initially generated, and subsequent item reduction resulted in 23 items that were retained on the final scale. Items were generally rated extremely relevant and were judged to capture the content area (content validity index = 0.87). The CCIIS was easily understood, and the scaling format worked well. Older children preferred written items, while younger children will require a modified, pictorial version.
CONCLUSIONS
The CCIIS is a new self-report measure with demonstrated content validity and specific relevance for young school-aged children following pediatric intensive care unit hospitalization. Valid, accessible, and developmentally appropriate measures are essential to identify high-risk children and, ultimately, promote healthy growth and development.
DOI: 10.1097/PCC.0b013e31816c70d4
PubMed: 18446107
Affiliations:
Links toward previous steps (curation, corpus...)
Le document en format XML
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Mcharg</name></author><author><name sortKey="Dell Api, Melissa" sort="Dell Api, Melissa" uniqKey="Dell Api M" first="Melissa" last="Dell'Api">Melissa Dell'Api</name></author><author><name sortKey="Johnston, C Celeste" sort="Johnston, C Celeste" uniqKey="Johnston C" first="C Celeste" last="Johnston">C Celeste Johnston</name></author><author><name sortKey="Stevens, Bonnie" sort="Stevens, Bonnie" uniqKey="Stevens B" first="Bonnie" last="Stevens">Bonnie Stevens</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2008">2008</date><idno type="RBID">pubmed:18446107</idno><idno type="pmid">18446107</idno><idno type="doi">10.1097/PCC.0b013e31816c70d4</idno><idno type="wicri:Area/Main/Corpus">001A48</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">001A48</idno><idno type="wicri:Area/Main/Curation">001A48</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">001A48</idno><idno type="wicri:Area/Main/Exploration">001A48</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Developing the Children's Critical Illness Impact Scale: capturing stories from children, parents, and staff.</title><author><name sortKey="Rennick, Janet E" sort="Rennick, Janet E" uniqKey="Rennick J" first="Janet E" last="Rennick">Janet E. Rennick</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nursing Research, the Montreal Children's Hospital of the McGill University Health Centre, School of Nursing, McGill University, Montreal, Quebec, Canada H3H 1P3. janet.rennick@muhc.mcgill.ca</nlm:affiliation><country>Canada</country><wicri:regionArea>Department of Nursing Research, the Montreal Children's Hospital of the McGill University Health Centre, School of Nursing, McGill University, Montreal, Quebec</wicri:regionArea><wicri:noRegion>Quebec</wicri:noRegion></affiliation></author><author><name sortKey="Mcharg, Linda F" sort="Mcharg, Linda F" uniqKey="Mcharg L" first="Linda F" last="Mcharg">Linda F. Mcharg</name></author><author><name sortKey="Dell Api, Melissa" sort="Dell Api, Melissa" uniqKey="Dell Api M" first="Melissa" last="Dell'Api">Melissa Dell'Api</name></author><author><name sortKey="Johnston, C Celeste" sort="Johnston, C Celeste" uniqKey="Johnston C" first="C Celeste" last="Johnston">C Celeste Johnston</name></author><author><name sortKey="Stevens, Bonnie" sort="Stevens, Bonnie" uniqKey="Stevens B" first="Bonnie" last="Stevens">Bonnie Stevens</name></author></analytic><series><title level="j">Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies</title><idno type="ISSN">1529-7535</idno><imprint><date when="2008" type="published">2008</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Canada (MeSH)</term><term>Child (MeSH)</term><term>Critical Illness (psychology)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>Inpatients (psychology)</term><term>Intensive Care Units, Pediatric (MeSH)</term><term>Male (MeSH)</term><term>Nursing Staff, Hospital (psychology)</term><term>Parents (psychology)</term><term>Patient Discharge (MeSH)</term><term>Severity of Illness Index (MeSH)</term><term>Stress Disorders, Post-Traumatic (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Canada (MeSH)</term><term>Enfant (MeSH)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Indice de gravité de la maladie (MeSH)</term><term>Maladie grave (psychologie)</term><term>Mâle (MeSH)</term><term>Parents (psychologie)</term><term>Patients hospitalisés (psychologie)</term><term>Personnel infirmier hospitalier (psychologie)</term><term>Sortie du patient (MeSH)</term><term>Troubles de stress post-traumatique (MeSH)</term><term>Unités de soins intensifs pédiatriques (MeSH)</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Canada</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Maladie grave</term><term>Parents</term><term>Patients hospitalisés</term><term>Personnel infirmier hospitalier</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Critical Illness</term><term>Inpatients</term><term>Nursing Staff, Hospital</term><term>Parents</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Child</term><term>Female</term><term>Humans</term><term>Intensive Care Units, Pediatric</term><term>Male</term><term>Patient Discharge</term><term>Severity of Illness Index</term><term>Stress Disorders, Post-Traumatic</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Canada</term><term>Enfant</term><term>Femelle</term><term>Humains</term><term>Indice de gravité de la maladie</term><term>Mâle</term><term>Sortie du patient</term><term>Troubles de stress post-traumatique</term><term>Unités de soins intensifs pédiatriques</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Canada</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>OBJECTIVE</b></p><p>With the evolution of pediatric critical care medicine has come an awareness of the ethical imperative of healthcare professionals to attend to the psychological sequelae of technologically intensive care. Recent attempts to measure psychological outcomes in these children have been limited. The purpose of this study was to develop a measure of posthospitalization distress, the Children's Critical Illness Impact Scale (CCIIS), for children aged 6-12 yrs following pediatric intensive care unit hospitalization.</p></div><div type="abstract" xml:lang="en"><p><b>DESIGN</b></p><p>A measurement development study consisting of two phases: 1) item generation and scale formatting; and 2) item reduction and scale revisions. Items were generated following thematic analysis of qualitative data from focus groups and individual interviews with children, parents, and healthcare professionals. Children reviewed items for interpretability and importance and assessed scaling technique and item presentation; healthcare professionals further evaluated item relevance.</p></div><div type="abstract" xml:lang="en"><p><b>SETTING</b></p><p>The pediatric intensive care units of three quaternary care, Canadian pediatric teaching hospitals.</p></div><div type="abstract" xml:lang="en"><p><b>PATIENTS</b></p><p>Phase 1 included 18 children, 22 parents, and 12 healthcare professionals (n = 52). Phase 2 included eight children and four healthcare professionals (n = 12).</p></div><div type="abstract" xml:lang="en"><p><b>MEASUREMENTS AND MAIN RESULTS</b></p><p>Five key domains were identified in the thematic analyses: worries, fears, friends and family, sense of self, and behaviors. Thirty-six items were initially generated, and subsequent item reduction resulted in 23 items that were retained on the final scale. Items were generally rated extremely relevant and were judged to capture the content area (content validity index = 0.87). The CCIIS was easily understood, and the scaling format worked well. Older children preferred written items, while younger children will require a modified, pictorial version.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b></p><p>The CCIIS is a new self-report measure with demonstrated content validity and specific relevance for young school-aged children following pediatric intensive care unit hospitalization. Valid, accessible, and developmentally appropriate measures are essential to identify high-risk children and, ultimately, promote healthy growth and development.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">18446107</PMID><DateCompleted><Year>2008</Year><Month>07</Month><Day>28</Day></DateCompleted><DateRevised><Year>2019</Year><Month>12</Month><Day>10</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Print">1529-7535</ISSN><JournalIssue CitedMedium="Internet"><Volume>9</Volume><Issue>3</Issue><PubDate><Year>2008</Year><Month>May</Month></PubDate></JournalIssue><Title>Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies</Title><ISOAbbreviation>Pediatr Crit Care Med</ISOAbbreviation></Journal><ArticleTitle>Developing the Children's Critical Illness Impact Scale: capturing stories from children, parents, and staff.</ArticleTitle><Pagination><MedlinePgn>252-60</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1097/PCC.0b013e31816c70d4</ELocationID><Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">With the evolution of pediatric critical care medicine has come an awareness of the ethical imperative of healthcare professionals to attend to the psychological sequelae of technologically intensive care. Recent attempts to measure psychological outcomes in these children have been limited. The purpose of this study was to develop a measure of posthospitalization distress, the Children's Critical Illness Impact Scale (CCIIS), for children aged 6-12 yrs following pediatric intensive care unit hospitalization.</AbstractText><AbstractText Label="DESIGN" NlmCategory="METHODS">A measurement development study consisting of two phases: 1) item generation and scale formatting; and 2) item reduction and scale revisions. Items were generated following thematic analysis of qualitative data from focus groups and individual interviews with children, parents, and healthcare professionals. Children reviewed items for interpretability and importance and assessed scaling technique and item presentation; healthcare professionals further evaluated item relevance.</AbstractText><AbstractText Label="SETTING" NlmCategory="METHODS">The pediatric intensive care units of three quaternary care, Canadian pediatric teaching hospitals.</AbstractText><AbstractText Label="PATIENTS" NlmCategory="METHODS">Phase 1 included 18 children, 22 parents, and 12 healthcare professionals (n = 52). Phase 2 included eight children and four healthcare professionals (n = 12).</AbstractText><AbstractText Label="MEASUREMENTS AND MAIN RESULTS" NlmCategory="RESULTS">Five key domains were identified in the thematic analyses: worries, fears, friends and family, sense of self, and behaviors. Thirty-six items were initially generated, and subsequent item reduction resulted in 23 items that were retained on the final scale. Items were generally rated extremely relevant and were judged to capture the content area (content validity index = 0.87). The CCIIS was easily understood, and the scaling format worked well. Older children preferred written items, while younger children will require a modified, pictorial version.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The CCIIS is a new self-report measure with demonstrated content validity and specific relevance for young school-aged children following pediatric intensive care unit hospitalization. Valid, accessible, and developmentally appropriate measures are essential to identify high-risk children and, ultimately, promote healthy growth and development.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Rennick</LastName><ForeName>Janet E</ForeName><Initials>JE</Initials><AffiliationInfo><Affiliation>Department of Nursing Research, the Montreal Children's Hospital of the McGill University Health Centre, School of Nursing, McGill University, Montreal, Quebec, Canada H3H 1P3. janet.rennick@muhc.mcgill.ca</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>McHarg</LastName><ForeName>Linda F</ForeName><Initials>LF</Initials></Author><Author ValidYN="Y"><LastName>Dell'Api</LastName><ForeName>Melissa</ForeName><Initials>M</Initials></Author><Author ValidYN="Y"><LastName>Johnston</LastName><ForeName>C Celeste</ForeName><Initials>CC</Initials></Author><Author ValidYN="Y"><LastName>Stevens</LastName><ForeName>Bonnie</ForeName><Initials>B</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType><PublicationType UI="D023361">Validation Study</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Pediatr Crit Care Med</MedlineTA><NlmUniqueID>100954653</NlmUniqueID><ISSNLinking>1529-7535</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="CommentIn"><RefSource>Pediatr Crit Care Med. 2008 May;9(3):336-7</RefSource><PMID Version="1">18446099</PMID></CommentsCorrections></CommentsCorrectionsList><MeshHeadingList><MeshHeading><DescriptorName UI="D002170" MajorTopicYN="N" Type="Geographic">Canada</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D016638" MajorTopicYN="N">Critical Illness</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007297" MajorTopicYN="N">Inpatients</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D015278" MajorTopicYN="N">Intensive Care Units, Pediatric</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D009741" MajorTopicYN="N">Nursing Staff, Hospital</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D010290" MajorTopicYN="N">Parents</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D010351" MajorTopicYN="N">Patient Discharge</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012720" MajorTopicYN="Y">Severity of Illness Index</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D013313" MajorTopicYN="N">Stress Disorders, Post-Traumatic</DescriptorName></MeshHeading></MeshHeadingList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2008</Year><Month>5</Month><Day>1</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2008</Year><Month>7</Month><Day>29</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2008</Year><Month>5</Month><Day>1</Day><Hour>9</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">18446107</ArticleId><ArticleId IdType="doi">10.1097/PCC.0b013e31816c70d4</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Canada</li></country></list><tree><noCountry><name sortKey="Dell Api, Melissa" sort="Dell Api, Melissa" uniqKey="Dell Api M" first="Melissa" last="Dell'Api">Melissa Dell'Api</name><name sortKey="Johnston, C Celeste" sort="Johnston, C Celeste" uniqKey="Johnston C" first="C Celeste" last="Johnston">C Celeste Johnston</name><name sortKey="Mcharg, Linda F" sort="Mcharg, Linda F" uniqKey="Mcharg L" first="Linda F" last="Mcharg">Linda F. Mcharg</name><name sortKey="Stevens, Bonnie" sort="Stevens, Bonnie" uniqKey="Stevens B" first="Bonnie" last="Stevens">Bonnie Stevens</name></noCountry><country name="Canada"><noRegion><name sortKey="Rennick, Janet E" sort="Rennick, Janet E" uniqKey="Rennick J" first="Janet E" last="Rennick">Janet E. Rennick</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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